Tips from readers on how to make life easier when you can’t leave the house.
“I use Craigslist a lot and many people are so kind to deliver right to me — even setting up items for me. I sell unneeded items on Craigslist, too, and make a few dollars now & again. I also sell my paintings & bird houses & feeders & painted tennis shoes . I also grow my own veggies & strawberries.” – DL
🌹 Referrals Through Area Agency on Aging
“When I needed wheelchair ramps, I called every organization in the state. The only one that was helpful was the Area Agency on Aging – even though I am only 30 years old. They sent me a list of resources and I got custom-built free ramps on my house. They have all kinds of resources and information there for help you can get in your home.” – DN
🌹 Living With Others
“I am not well enough to make social plans and it stresses me out to have people come over. Living with housemates works really well for me. I don’t have to plan anything, but if I want company, people are already there in my house. I never invite people to the house, but my housemates sometimes invite their friends and family, so I make new friends that way.”
🌹 Electric Wheelchairs and Scooters
“Medicare and Medicaid paid for me to have an electric mobility scooter to use in my home. I got this by calling medical supply companies on the Medicare website. I kept calling until I found one that accepted Medicare and billed Medicare directly. I asked them to explain to me exactly what the criteria is for getting approved and what all the steps were.” – JS
“I am bedridden and can’t get to my front door to take delivery of postal items that need to be signed for. But I can walk to my bedroom window so I have delivery people deliver items through my bedroom window.” -KC
🌹 Family Events
“For one daughter’s wedding and the other daughter’s baby shower, their friends set up a live feed for me so I could watch on laptop from my bed. It was truly wonderful to be included in that way!” – KC
🌹 Power of Attorney
“I’ve had a number of times where I needed a notary (for Power of Attorney and other documents). A traveling notary who would come to my house was not cheap. I called my State Representative’s office and they offered to send staff over (for free!) to notarize documents. It seems like it should be a simple problem to solve, but I was almost in tears at the offer. We had to reschedule twice, but they took care of all the notarizing.” – JM
“We have had acupuncturists and a cranial osteopath come to our home. Insurance paid for part of it. We also found a service that would send someone to our home to insert a PICC line. You can also find people who give massages it will come to your home. And sometimes a lymphatic massage might be helpful if people have sensitivities or if deep massage might release something that could be not so great for a CFS patient.” – JD
“I bought a rolling stool to use in the kitchen. It is a little bit tippy/dangerous, but it makes it possible for me to prepare snacks.” – VO
“I’ve had a hard time finding people to be caregivers. I finally discovered a site called care.com which has been just great.” – JD
🌹 Bored While Resting?
Colleen Steckel has created this great list of activities you can do from home or from bed.
🌹 Updated May 2017. Please let me know more ideas to add to this list!!