Social Security has a special ruling for Chronic Fatigue Syndrome. This ruling is a great tool you can use to help your case. It is helpful to keep in mind that this ruling is not a requirement. You do not need to exactly meet everything in this ruling in order to get approved. This is just one of many, many ways you can improve your chances of getting approved.
🌸 Here’s where you can find the complete Social Security ruling. Unfortunately, it can be a bit long and confusing. Don’t worry if you can’t understand everything in the full ruling. You can still use it to help your case.
🌸 Here’s a shorter version that includes the key points about diagnosis and medical criteria: Medical Criteria from The Social Security Ruling. This includes just the important medical information, without all the confusing Social Security policy language!
🌸 Social Security has also created this handy (and surprisingly good) fact sheet for doctors: Providing Medical Evidence for People with ME/CFS.
What Do You Have?
🌸 You can also use this ruling if you have been diagnosed with Myalgic Encephalomyelitis, or if this is how you identify your illness.
🌸 However, Social Security uses the term “Chronic Fatigue Syndrome” so some people choose to include this term throughout their application and in their medical records, so that they will have the best chance of making sure the ruling gets applied to their case.
Using the Ruling With Your Doctor
🌸 It is a good idea not to rely on the doctors hired by Social Security. If at all possible, work with your own doctors to get the documentation you need.
🌸 If you are looking for a doctor: How to Find a Doctor to Help With Disability Documentation
🌸 It’s a great help if you can talk with your doctor about your disability application and make sure you have their full support. Here’s How to Have “The Talk”
🌸 Here’s how Zinnia worked with her doctor to get approved: Zinnia Uses the Social Security Ruling for Chronic Fatigue Syndrome
Print and Bring
🌸 Doctors are not trained in Social Security policies. It is very (very) unlikely that your doctor will know this ruling. Most doctors are not familiar with disability policies.
🌸 Here’s where you can find a printable version of the medical criteria from the ruling Overview of Social Security Ruling (version you can print) to bring to your doctor to review and discuss.
🌸 If you feel comfortable, you can ask your doctor their medical opinion, “Do you think I meet the criteria in this ruling?” If your doctor says, “Yes,” this is a great time to request a letter including the language from the ruling.
🌸 If your doctor is willing to read more, you can also share this excellent Social Security fact sheet on Providing Medical Evidence for People with ME/CFS.
Forms and Letters from Your Doctor
🌸 It is a HUGE help if you can work with your doctor to collect a letter including details on how your condition matches this ruling. Social Security will not ask your doctor to do this. It will only happen if you ask your doctor yourself. How to Get a Great Disability Letter from Your Doctor
🌸 Instead of a letter (or in addition to a letter) many people ask their doctor to fill out an RFC function form. This page has a special Chronic Fatigue Syndrome form that includes exact language from the Social Security ruling. Sample Residual Functional Capacity Forms
🌸 If your doctor hates paperwork: How To Get Your Doctor to Fill Out Disability Paperwork
Collecting Medical Evidence
🌸 One of the key parts of this ruling is collecting medical evidence and tests for your condition. Here’s an overview of how to use this ruling to Collect Medical Evidence for Chronic Fatigue Syndrome.
🌸 Luckily, the ruling is a bit flexible. They will also recognize other medical tests, including new tests developed after the ruling was written. If you like to learn more about other forms of testing here’s How to Get Tested for Myalgic Encephalomyelitis and Chronic Fatigue Syndrome
🌸 Which tests helped the most for disability applications? Good question. We took a survey of our readers. What medical test was the most helpful for your disability approval?
🌸 Spoiler alert: The most common test readers reported finding helpful was neuropsychological testing.
🌸 How many tests should you get? Are your test results “good enough”? How Many Medical Tests Do I Need?
🌸 The ruling and fact sheet also describe the importance of documenting your ability to function, and your limitations.
🌸 Physical functioning includes how well and how long you can walk, sit, stand, stoop, bend, twist, turn, grasp, lift and other physical activities.
🌸 Mental and cognitive functioning includes how well you can focus, concentrate, follow directions, and remember things. It can also be your ability to have interactions with other people.
🌸 Proving functioning is extremely important in Social Security cases. Learn How to Prove Functioning.
🌸 Many people with ME or CFS find that documenting mental health can be a great help to their case. How to Document Mental Health
🌸 Great story from Jamesia who helped get a friend get approved by working with doctor to document symptoms: Jamesia Uses the Social Security Listing of Impairments
🌸 Here is an article by attorney Ken Casanova that reviews and describes the ruling.
🌸 Here you will find many more ideas and strategies for How to Get Approved for Chronic Fatigue Syndrome
🌸 If you are also planning to apply for Long Term Disability (private disability through your employer) please take a look here: How to Get LTD for ME and Chronic Fatigue Syndrome
What Do You Think?
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Updated October 2018. If you found this page helpful, please share it with others by pressing one of these magic little buttons: