Below are two stories from wonderful and kindhearted readers who shared copies of their neuropsychological reports. These reports offer insightful and detailed documentation of evaluating problems with memory, focus and concentration in patients with Fibromyalgia, Myalgic Encephalomyelitis and Chronic Fatigue Syndrome.
If you are working with a neuropsychologist who is not familiar with evaluation of Fibromyalgia and ME patients (but is open to learning more) you may wish to share these reports with them.
Lilac’s Neuropsychological Evaluation with Dr. Bekken
Lilac had two neuropsychological assessments with very different results!
The first assessment was from a local neuropsychologist who did not have knowledge or expertise in Fibromyalgia. The report concluded that the test data “does not support any significant cognitive functioning deficit” and lists diagnostic impressions as “depression and anxiety”.
After this, Lilac had a neuropsychological evaluation performed by Dr. Kaaren Bekken. This report concludes “evidence of significant impairment” and “continues to be totally disabled from work for multiple reasons.” The report also details the clinical evidence supporting her Fibromyalgia symptoms and the connection between Fibromyalgia and cognitive dysfunction.
Lilac was kind enough to share a copy of this excellent report written by Dr. Bekken:
Christina’s Neuropsychological Evaluation with Dr. Lange
Christina Steiger had a neuropsychological evaluation while applying for disability for Chronic Fatigue Syndrome and Postural Orthostatic Tachycardia Syndrome (POTS). Her testing was performed by Dr. Gudrun Lange, who is widely respected for her work evaluating patients with Myalgic Encephalomyelitis and Chronic Fatigue Syndrome.
Unfortunately, we have been told by readers that Dr. Lange is not currently offering evaluations (please check, this may have changed). Fortunately, Christina kindly shared a copy of Dr. Lange’s fantastic report to help others who are applying.
Dr. Lange’s report concluded that test results show “Dr. Steiger has suffered from an overall severe decline in cognitive function characterized by absolute impairments in sustained attention, speed of information processing, learning and memory that significantly impact on her ability to fulfill the requirements of her position.”
Dahlia’s Neuropsychological Test
Dahlia had a similar experience to Lilac. She visited a local neuropsychologist and her test results showed cognitive impairments, but attributed all symptoms to mental illness. She was approved for Social Security Disability, but had problems with her Long Term Disability. (Long Term Disability is disability through your employer).
After her initial testing, Dahlia flew to a different state to have a second assessment with a neuropsychologist who was experienced and knowledgable with Myalgic Encephalomyelitis and Chronic Fatigue Syndrome. Read her story here: Dahlia Proves She’s Not Mental
Neuropsychological Testing While Applying for Disability
Many of our readers with ME, CFS, Lyme, and mold and chemical sensitivities report that their neuropsychological tests concluded symptoms were caused by mental illness. While this type of mental health documentation can be helpful for Social Security disability applications, it can cause problems for anyone applying for Long Term Disability. Learn more about:
For ME or CFS, readers also recommend sharing with a neuropsychologist this report that include more information on cognitive impairments. From chapter four of the Institute of Medicine Report: Neurocognitive Manifestations in ME/CFS
What Do You Think?
Updated January 2019. Please comment below with stories, ideas, questions or suggestions. Please let us know if any links on this page stop working.
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