How I Got a Home Aide for POTS

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Art by Robin Mead

Dianthus applied for a state home care program that provides free aides to people with disabilities. Her home aides provide care and support for activities she needs assistance with because of Postural orthostatic tachycardia syndrome (POTS).

Dianthus was kind enough to share her story and tips for applying to help others.


How I Got a Home Aide

I was approved to get home aides for 99 hours per month. My aides main duties are laundry, dishes, floors, meal planning, food prep, grocery shopping, washing hair and other personal care needs (grooming, feeding, mobility, etc). My aides are paid by the state at $14.50 per hour.

Getting approved for an aide was physically simple. It took a few phone calls, one home visit, and one appointment with my doctor. But it was a lot of emotional labor.

Starting the Application 

A friend started the process for me. I sat next to her as she called and told them my name, contact info, and that I need personal care or home care services. A caseworker called me back a few days later and scheduled an in-home intake assessment.

Home Assessment

Next the intake worker came to my house, sat in a chair, asked me a bunch of questions about my personal care, and how much home care I need. The caseworker brought all the paperwork and filled it out for me and gave it to me to sign. The caseworker recommended a level of services that best suited me.

Approval is based on your physical limitations. For example: If you need help with grooming, brushing your hair, bathing, dressing, and feeding yourself. If you have fallen inside your home due to your medical issues, that is helpful to mention, too.

Doctor Visit

The day after my in-home assessment, I chose to see my doctor to let him know how helpful it would be to be approved. Then the caseworker faxed a medical records request to my doctor, he faxed the records back, and I was approved.

Approval!

My intake was in April, and I was approved in June. It was worth the two months of stress. I was scared that they would see me as an unfit parent if I needed support. I took the risk, faced the fear, and it paid off.

After the approval, they use the amount of personal care and household help you need to determine the number of hours they will provide a home aide. I was approved for 99 hours per month.

Finding an Aide

You can use aides sent by an agency, or you can select your own aides:

🌷 The most common way is to select a friend or relative. Then that person signs up to be registered as a home care worker to get paid by the state.

🌷 Another option is to advertise and interview aides and select one.

🌷A third option is to look on the state home care website, which will have a list of people already registered. I was not told this was an option until last week… nearly a year after approval.

Other Benefits

In addition to home aides, this program also gives me transportation. I get rides to and from medical appointments, plus 30 non-medical rides each month.

I am able to travel anywhere within 15 miles of my home and I am allowed to have one person travel with me. I take my kid along as the helper.


Learn More

How state home aide programs work: How To Apply for a State Home Aide

More Success Stories and tips for applying: How I Got Approved for a Home Aide

Updated January 2019. Please comment below with stories, ideas, questions or suggestions. Please let us know if any links on this page stop working. If you found this page helpful, please share it with others by pressing one of these magic little buttons:

4 thoughts on “How I Got a Home Aide for POTS”

  1. What I would believe is even more beneficial, is to obtain the titles of the assessment instruments they use and what the various levels of service hours are tied with, once the evaluations are completed.

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