How Patty’s Lawyer Never Told Her What She Needed to Know


Quite sadly, Patty did not win her disability case. Quite happily, Patty is an angel who wants to share what she learned so that you can win your disability case! Patty has some super good, super helpful advice.

Patty’s Story

My lawyer was from a well-known firm in Boston that claimed a 97% success rate with disability cases. They told me they would not have taken my case unless they thought I would win.

I believed I had a strong case. I had an MRI showing 4 lesions, bulging C4, and degenerative changes. Plus, I had three positive Lyme tests.

My records included a consistent history of regular doctor’s visits and ongoing medical treatment including a PICC line and infusions.

My doctor filled out an excellent function form detailing my limitations and stating that I was unable to work, plus I had two years of evidence of biweekly visits to a therapist for anxiety, depression, and PTSD.

I also had a strong work record with a 15 year career as an Registered Nurse making $80,000, which I left behind when I became disabled.

I was with my lawyer for 15 months and he never once suggested that anything was wrong or that I needed to do anything different.

If I can help anyone else win their case, I will share what I learned. These are the four things my lawyer never told me.

“You are Seeing the Wrong Doctor”

When I first became sick, I saw an infectious disease doctor, but then she referred me to a Lyme Literate Naturopathic Doctor. I had no clue that this switch would hurt my disability case. I was just happy to get treated and get help. For two years, I continued to see the Naturopath and never knew that anything was wrong.

In the end, Social Security said my doctor was not an “acceptable medical source” and did not give weight to his records, treatments or lab tests. (Please see  link below for more information on how you can tell if you are seeing the right kind of doctor).

“You are Seeing the Wrong Therapist”

I saw my therapist biweekly for 2 straight years. I even got my entire chart copied for hearing. If I had known that Social Security has rules about therapists and counselors, I could have switched to a psychiatrist or psychologist. No one ever told me this. At the hearing, the only question the judged asked me about my mental health was, “Did you drive yourself to the therapy visits?”

Once again, Social Security said my therapist was not an “acceptable medical source” and did not give weight to her records.

“Get Testing for Every Condition”

One of my diagnoses was peripheral neuropathy. I was treated unsuccessfully for two years with various meds. However, I never got any nerve testing done. (I didn’t need any tests to tell me I had peripheral neuropathy because I could feel it in hands and feet). Had I known a test was necessary, I would have gotten it before my court date.

In the end, Social Security did not consider my neuropathy because they said I did not have any proof.

“Get Your Forms Co-Signed”

A few months before my hearing, I asked my Naturopathic doctor to fill out an RFC function form. I had learned from my Lyme group that I needed to explain everything to my doctor so that my form included the amount of breaks I needed during the day, the amount of time I laid on my back, how long I could stand consistently, and details on my persistent neuropathy and fatigue.

My lawyer never mentioned that the form was signed by the wrong kind of doctor. If I had known, I could have gone back to my old doctor, or I could have asked my Naturopath if he worked on a medical team with another doctor who could review my case and co-sign the form. I also could have asked by Naturopath if he could refer me to a colleague who might be willing to evaluate me and fill out or co-sign the form. That is what Daisy did and she got approved.

My form had everything I needed to get approved, but it was not signed by the right kind of doctor. Social Security did not consider it.

At My Hearing

My lawyer called me the night before my hearing to prep me. Over the phone we reviewed 25 questions he knew they would ask and we tweaked the way I would word things. He emailed my responses so I could study them overnight.

Like many people with Lyme, I have memory issues, concentration problems, difficulty focusing, and anxiety. I was a complete basket case and couldn’t retain a thing even with the pages in front of me. I wish they had given me a week to prepare!

At the hearing, the judge seemed heavily concerned with: Who cooks the meals? Who does dishes and laundry? Who runs errands? Who does groceries? Who cleans the house? Who gets your four kids up for school? Who drives your kids to activities? Is some one at your house helping you shower or toilet?

I explained to the judge that household activities were a collective effort between myself, my husband, and my mother and sisters. I described how I could not stand for more than 15 minutes, and often could not type, write or hold objects.

Social Security concluded that I could be a fruit picker, a truck driver, or a post office worker. This still makes me laugh.


Patty’s story has a semi-happy ending. Her health turned a corner and she returned to part-time work.

“Previously, I worked 12-hour shifts and juggled 7 patients and a charge nurse. Now I do home care for one patient, two hours a day. I still can’t work a full day or even every day.”

Patty did not continue to pursue disability. She wanted to share her story to help others.

Learn More

🍋 Seeing the Right Kind of Doctor (Acceptable Medical Source)

🍋 How to Get a Co-Sign

🍋 How to Get a Great RFC Function Form

🍋 The Sleepy Girl Guide to Social Security Disability

11 thoughts on “How Patty’s Lawyer Never Told Her What She Needed to Know”

  1. This site is a GODSEND to our huge tick-borne and other diseases on all the great blogs you write with UNLIMITED links to accurate/important info! thanks so much for your labor of love helping yourself & ALL of us with your/our shared experiences so folks don’t have to go thru the hell we once went thru too.


  2. With SS its abot proving you can’t work, and yes it does help to combine reasons, but also since test based evidence is weak for CFS and fibro type illnesses it may also make sense to try and get it without them being the focus.

    This website is such an amazing resource for SS related to ME/CFS, fibro, lyme, etc.


  3. Patty said she was seeing a “counselor” instead of a psychologist or a psychiatrist…

    Would someone please tell me what a “counselor” is then? Is it some kind of social worker or something else? what credentials and experience would they have or not have that would make the judge deem those appts. not relevent?


    1. Hi Kim,

      A counselor can be any kind of mental health practitioner who is not a licensed psychologist or psychiatrist.

      Counselors may be able to help your case, but those records cannot win your case on their own.

      Please see the link above about acceptable medical sources. hope this helps.


  4. Hi sleepygirl,
    I found your page after reading my Co-Cure emails. I don’t know if you read the Co-Cure that came out about the incidences of all the US nurses with CFS/FM. I have always knew there was some connection there. I am an RN as well, I was working in ICU doing 12 hr shifts when I developed problems with my spine like Patty. My symptoms came shortly after I was heavily “encouraged” to get the Hepatitis B vaccine series due to potential exposure. (May be coincidence but I have wondered also if this may have something to do with my symptoms) Long story short I went from FT work to PT for a couple years then became so incapacitated with fatigue, pain that I could not work any longer. I was seeing many different health care professionals, i.e neurosurgeon, neurologist, psychiatrist, acupuncturist, chiropractor, for chronic pain and associated depression. After a year, and gathering all my evidence I decided to try to apply for SS and got a guide on how to apply for SS. I had a boatload of papers. My claim was based all on my spine and the resulting depression as well. I was not diagnosed with CFS/FM and then Lymes until later. I was very fortunate and my claim went through the first time about six months after I applied. This makes me wonder if SS places a red flag on cases with Lymes, CFS, FM. I know several people that applied with Lymes and CFS and they were denied as well.
    Your page is beautiful, you are so talented. I have read many of your articles. There so much helpful information.
    Best Regards to you,

    Liked by 1 person

    1. Sidra,

      Thank you for all the time you have taken to write your story here. It is very thoughtful and I hope many people will come by and read it.

      I’m so happy to hear that you were approved quickly, it sounds like you did a great job with gathering documentation.

      I do not know what co-cure is?


  5. What a lovely offering from Patty Skelton Preston and how shocking that the lawyer couldn’t covey these few simple pointers to her.
    I hope her better health continues and improves. Love to her and to you, sleepy girl.
    Thank you for being a blessing to those with CFS/ME.


  6. What a wonderful website. Thank you! I have two questions: where did you find the fabulous art for your banner? And how might one submit something to you to publish?


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