How to Work Without (Too Much) Trouble

Artwork: Robin Mead

A few rules and regs that may help you out if you are considering going back to work while on disability.


๐Ÿ’ฎ You are allowed to work while on disability. If you earn under $1,170 per month you can still be considered disabled.

๐Ÿ’ฎ There are some work incentive programs that will allow you to earn a higher amount and still be considered disabled.

๐Ÿ’ฎ If you are self-employed, they will consider the amount you earn after business expenses. They may also consider a yearly average.


๐Ÿ’ฎ You must report to Social Security when you start working.

๐Ÿ’ฎ It is a good idea to notify them in writing and send it by certified mail or bring it to your local office and get a stamped receipt.

๐Ÿ’ฎ Breaking news: If you are on SSI and have a smartphone, you can use an app to report your wages. If you don’t have a smartphone, and wish you did, look here: look here.


๐Ÿ’ฎย When you go back to work, there are two things you need to consider

๐Ÿ’ฎ First: Will this affect my disability check financially? If you are on SSDI, you do not need to worry about this question. If you are on SSI, please learn a whole lot more about Working and Financial Regs.

๐Ÿ’ฎ Second: Will this affect my future medical reviews? Learn a whole lot more about Working and Medical Reviews

๐Ÿ’ฎย Please keep in mind that these are completely separate areas. You may be totally safe according to the financial regs, but run into problems with the medical regs. Or you may be totally safe according to the medical regs, but run into problems with the financial regs.


๐Ÿ’ฎ Yes. Do call Social Security to notify them every time you stop or start working. Let them know any changes to your income right away. Even better, notify them in writing.

๐Ÿ’ฎย  No. Do not call Social Security to ask specific questions about working regulations.

๐Ÿ’ฎ The people who answer the phones at Social Security are not trained in the complex working regulations. They may know a little of the basics, but it is very common for them to give out wrong information in this area.

๐Ÿ’ฎ If they tell you the wrong information, and you follow it, you will be the one who owes money back. This has happened to many people.

๐Ÿ’ฎ If you want more info about working, you can attempt to research the written regulations on the Social Security website.

๐Ÿ’ฎ Learn more:ย How to Respond When Social Security Tells You Weird, Funny, or Random Things


๐Ÿ’ฎ If you call Social Security or read online or talk to work incentive programs, you will be told you are allowed to work.

๐Ÿ’ฎ It is true! You are allowed! However, this does not mean you will have no problems.

๐Ÿ’ฎ Some people report that working can make it more difficult to pass a medical review in certain situations. Some people on SSI run into problems with the financial regs and owe money back. If you learn the regs and plan ahead you can avoid these problems.


๐Ÿ’ฎ Many people just go out and get a job and think they have no problems.

๐Ÿ’ฎ Sometimes this is because there really are no problems! But sometimes this is because Social Security is very slooow. It can take a few months or a few years before they get around to processing your file.

๐Ÿ’ฎ Many people do work and pass all their medical reviews with no issues. Next time you meet someone who says they are on disability and working, ask them how long it has been since they notified Social Security that they are working, and ask them if they have been through a medical disability review while working and if they passed the review without problems. If they have, maybe they can give you some tips!


If you are able to work and earn more than $1,170, Social Security will no longer consider you disabled and your disability check will discontinue.

If you are on SSDI, you can have nine months of Trial Work Periods where you can earn more than this without your check ending. Trial Work Periods are very confusing. Please be careful. It is easy to misunderstand and think you are safe when you are not. Learn more about work incentives.


๐Ÿ’ฎ If your condition has improved and you want to go off disability benefits, that is wonderful! It may be possible to keep your benefits while you transition back to work. It may be possible to keep Medicaid, even after you are working full time.

๐Ÿ’ฎ If you are planning to go back to work and go off disability benefits, you may be helped by looking into a Ticket to Work program and other work incentives. Your local Vocational Rehabilitation program may also be able to help. If you are on SSDI, also look into Trial Work Periods. It is possible to keep your benefits and health insurance while you make the transition.

๐Ÿ’ฎ Most states have special Medicaid programs for working people with disabilities. Look into what is available in your state.


If you are still disabled and wish to try working part-time while receiving benefits, please take a look here:

How to Handle Disability Reviews While Working

How to Be Prepared for a Continuing Disability Review

How Work Incentives Work



2 thoughts on “How to Work Without (Too Much) Trouble”

  1. Vocation Rehabilitation has a work incentives worker. They are outsourced by the federal govt to work to help people navigate the challenges of the finances and benefits while getting back to work while on SSI or SSDI. It’s so complicated to navigate. The people who do the social work as a work incentives worker have been great. Some more knowledgeable than others. Its good to know how long someone’s had the position to know how much they may know.
    DId you know if you get off SSI while on SSDI that you could still keep your medicaid. A work incentives worker can fill you in on the details.
    They are very helpful in knowing the ins and out of the programs of ssi, ssdi, the finances that need to be worked out ahead of time for going back to work and all the inns and outs of this, and also how other programs coordinate. Also, the do the PASS program for SSI which is a work incentives program where they help you set up your own business and your ssi payments get set aside in bank account while you work. (that’s a simplified version of the program.
    On the business side of things, if you want to set up your own business there are great free coaching programs. SCORE is in the federal building in our community. It’s a great organization. We also have Mountain Bizworks. There are probably ones like it in other cities.
    Another add on is that I bought a house while on Section 8,SSI,food stamps, etc because of the section 8 family self sufficiency program that lets you use section 8 money towards buying a home. I used my local Ontrack for free financial advise and home buying help which is a service funded by federal govt. It was through my local United Way agency, but different counties may have it under different names and the agencies are very different across regions in their level of cohesiveness and help.


    1. Thank you so much for this thoughtful post and all your great information, Sharon.

      You are the first person I have met who bought a house through Section 8. I would love to hear more about how you did this and how it worked out for you.


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