It’s possible that I have now joined every Facebook group ever created. Here are a few where I have found the moderators to be exceptionally kind and welcoming and a great group of people.
I am sure there are many wonderful groups I am accidentally missing or forgetting. If I left off a group where I post regularly, it was not intentional! Please comment below with any groups you like that got left off this list.
Lyme & Disability & Services
Bedridden and/or Homebound
25% of ME: Support Group for Severe CFS/ME (Welcomes caregivers as well)
ME and Chronic Fatigue Syndrome
ME/CFS for the Slightly Irreverent (full so accepts new members slowly)
See local and statewide groups below.
How to Get On
Peace. Love. Spoons. (Email newsletter)
Sleepy Girl ME Video Festival (Come watch)
People Who First Got Ill Early in Life
All The Beautiful People is a secret Facebook support and social group for those who first got ill earlier in life. To join, please send a message to Sandy Walker. Sandy notes: “Earlier in life = young adulthood (which goes up to age 40) and earlier. We’re not super strict with the age rules…we just recognize that getting ill during the years when you’re supposed to be building your life by going to school, starting a career and family, etc really impacts the your life, no matter how old you may be now.”
Wisconsin/Illinois – Lyme & Coinfection Support Group
Seattle – Spoonie Collective
Southeastern Michigan – CFS/ME/Fibro Support
Oregon – Chronic Illness
North Carolina & Ohio – ME/FM Support (welcomes members everywhere)
In the US
MEAction USA (health equality for ME)
ADAPT (disability activists)
No Nonsense Invisible Illness (“Support Without All the Woo and Woe”)
Surviving Toxic Mold (Natural Remedies Only)
Miss Diagnoses (Brilliant!!!)
A Few of My Favorite Websites (ME and CFS)
Chronic Illness & Disability Resources: Spoonie Living
Forums. Excellent articles: Health Rising
Advocacy, Activism, Millions Missing, BedFest, Unrest: #MEAction
Art from Bed – Poetry, Art, Performance: #Bedfest Website
See below for blogs and personal sites
Some Facebook groups for Spoonie and chronic illness housemates are listed on the bottom of this page: How to Find Housing that is Both Cheap & Good
I am forgetting many here. If any of my Facebook friends have a blog, please message me.
Updated February 2018. Please let us know if any links on this page stop working. If you found this page helpful, please share it with others by pressing one of these magic little buttons: