26 Great Facebook Groups (Plus a Few Other Things)

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Artwork: Robin Mead

Find your people. A super long list of wonderful Facebook groups for ME, CFS, Lyme, MCAS, POTS, Environmental Illness, and related conditions.

If you know more good groups that got left off this list (sorry!) please comment below with a link.

PROGRAMS AND SERVICES (US)

HOUSING

HOMEBOUND OR BEDRIDDEN

MYALGIC ENCEPHALOMYELITIS AND CHRONIC FATIGUE SYNDROME

ME AND CFS EMAIL NEWSLETTERS

CHRONIC LYME DISEASE

MOLD

MORE FUN THINGS YOU MIGHT HAVE!

A FEW GREAT WEBSITES

STATE PROGRAMS PROVIDING HOME AIDES

SPECIAL POPULATIONS

Pacing with a Heart Monitor – Pacing is a technique that many people with ME or CFS find helpful. This page explains pacing and also includes links to Facebook groups about pacing.

Undiagnosed Warrior Support Group – A place for patients that are searching for a medical diagnosis to find support and a place to call their medical home. We invite all members to share their knowledge, research, and experiences with one another in hopes that it will help each of us to finally receive the answers we have been longing for.

Ask Disabled Folks – Ask any question and other disabled folks will answer you! This group is for people with disabilities. If you are not disabled, try the sister group for relatives/friends/allies

No Nonsense Invisible Illness – “Support Without All the Woo and Woe.” This is a group for people who have Invisible Illnesses of any kind to find information and a community without nonsense. 

Better Together– Together we can learn what works to improve our health. We may use avoidance (of toxic mold, microorganisms, allergens, or manmade chemicals), environmental modification, biohacking, medications, supplements, or emotional or spiritual interventions.

The Wounded Healer. Heart Centered Spiritual Spoonie – a positive & high vibe group for everything New Age spirituality, with the only exception being there is no New Age Illness Shaming or Ableism allowed.

Natural Healing for Chronic Illness – PROACTIVE people seeking to better their health through natural means wherever possible.

#MEAction groups – Connect with other ME advocates. Share information, organizing and ideas for social justice and health equality. Facebook groups around the world.

Disability Advocates – ADAPT is an amazing network of people with disabilities who organize and advocate for disability rights. ADAPT National Facebook Page. Local facebook groups: Texas ADAPTChicago ADAPTMichigan ADAPT

For People Who First Got Ill Early in Life – All The Beautiful People is a secret Facebook support and social group for those who first got ill earlier in life. To join, please send a message to Sandy Walker. Sandy notes:  “Earlier in life = Young adulthood (which goes up to age 40) and earlier. We’re not super strict with the age rules…we just recognize that getting ill during the years when you’re supposed to be building your life by going to school, starting a career and family, etc, really impacts the your life, no matter how old you may be now.”

US SUPPORT GROUPS

THIS SITE

ME AND CFS RESOURCES

SHARING

HUMOR/LIGHT HEARTED

9 thoughts on “26 Great Facebook Groups (Plus a Few Other Things)”

  1. MillionsMissingVoice is a broadcasting page which is raising awareness for people with ME. It also supports campaigns to help pwME reach health equality. Most followers are from the UK, but it also have many followers from the US and Europe

    Like

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