26 Great Facebook Groups (Plus a Few Other Things)

Artwork: Robin Mead

It’s possible that I have now joined every Facebook group ever created.

Here are a few where I have found the moderators to be exceptionally kind and welcoming and a great group of people.

I am sure there are many wonderful groups I am accidentally missing or forgetting. If I left off a group where I post regularly, it was not intentional! Please comment below with any groups you like that got left off this list.

Lyme & Disability & Services

Social Service Connections for Lyme Disease (in the US)

Mast Cell

Mast Movement

Best Email Newsletter Ever Ever Ever

Peace. Love. Spoons.

ME and Chronic Fatigue Syndrome

Race to Solve ME/CFS

Myalgic Encephalomyelitis and Chronic Fatigue Syndrome


Women’s Lyme Disease Support Group

Western Lyme Awareness

By State

Wisconsin/Illinois – Lyme & Coinfection Support Group

Seattle – Spoonie Collective

Southeastern Michigan – CFS/ME/Fibro Support

California – IHSS (home services)

Oregon – Chronic Illness

North Carolina & Ohio – ME/FM Support (welcomes members everywhere)

In the US

MEAction USA (health equality for ME)

ADAPT (disability activists)

Good North American Doctors for POTS/OI/EDS/ME/CFS/Chiari/MCAD/RA/GP/Hash

Diagnosis Unknown

Undiagnosed Warrior Support Group

Undiagnosed Warrior Website

Interesting Projects

#BedFest: ME & CFS Poets, Artists and Creative People

Turn Green for Lyme: Lyme Overlays for Facebook Photos

LymeBrary: Book Share for Lyme & Invisible Illnesses

Multiple Chemical Sensitivities & Mold Avoidance

Mold & Chemical Sensitivity Lifestyle

Toxic Mold, CIRS and Lyme Disease Support Group



A Little Lyme Laughter

Miss Diagnoses (Brilliant!!!)


Candida Support and Information Group


The Wounded Healer. Heart Centered Spiritual Spoonie

A Few of My Favorite Websites (ME and CFS)

Forums. Excellent articles: Health Rising

Advocacy, Activism, Millions Missing, BedFest, Unrest: #MEAction

Art from Bed – Poetry, Art, Performance: #Bedfest Website

Our Spoonie Video Festival: Sleepy Girl ME Video Festival

See below for blogs and personal sites

Spoonie Housemates

Some Facebook groups for Spoonie and chronic illness housemates are listed on the bottom of this page: How to Find Housing that is Both Cheap & Good

Sleepy Girl

Find us on Facebook

Find us on Twitter

Great Blogs

Miss Diagnoses – Life with Multiple Ailments

The Sick and the Dating – Looking for Love Between Hospital Stays

Pain Pals – My Family and Friends Living with Me… and Chronic Illness

Seriously “Sensitive” to Pollution

Laura’s Pen – Life with Chronic Illness

Healing CFSME – Helping to Heal Within Illness and Move Towards Health

Portland Wellness Coach

Kai Elliot: Resilience Coach

But You Don’t Look Sick

Practicing Spirituality and Healing

Mommy is a Pothead: Chronicles of a Chronically Ill Jersey Girl

I am forgetting many here. If any of my Facebook friends have a blog, please message me.


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