My Moment in the Sun

Twenty five percent of people with Myalgic Encephalomyelitis or Chronic Fatigue Syndrome are homebound, bedbound or wheelchairbound.

Our moment in the sun. 🌞

After being bedbound all winter

DUDES I’M IN THE SUPERMARKET. HOORAY!

So. THIS happened.

I baked. Usually I can’t cook for myself and am bedbound.

Day at park with kiddos. Alone without help!

First time I made it to the beach in ten years

Enjoying the fresh air and sunshine after being trapped in my body and house for four years.

When I can’t go on an outing, I can go outside and see my flowers.

My kids take care of me when I am the mother and supposed to take care of them. It felt good to be watching them play.

A glorious spring day in Northern California. I’m homebound and times like this are few and far between.

Usually I only go to the doctor. But this time I was able to get out and get my hair done. New color style!

Always feels good when I can get to the beach.

I taught a little song at my mom’s memorial. A lovely moment for me.

My daughter took me out to collect my medical records!

Rolling on the Riverwalk

A trip to the local plant nursery. One of my favorite places.

A “good day” that I got to play with the dogs outside.

My Millie

Day at the falls with my boys. Lots of steps but I survived and loved every minute of it.

Went with my girlfriend to an art gallery in DC

I bless God for every single day I can get outside

Glorious moment in the sun

 

Video created by Laura Vitale