How to Get On: Authors & Artists

slipping-beauty.jpg_2D00_500x375.jpgLily

Lily is homebound and partially bedridden with Myalgic Encephalomyelitis and Chronic Fatigue Syndrome. She lives with a small group of kind-hearted, like-minded friends and familiars who brighten her days. If she is not here posting, she is almost certainly somewhere petting a cat.


bd31669f632df5f8bcd4ed006b555c38.jpgVicki 

Vicki’s blog is called “Miss Diagnoses” because she has too many diagnoses and because her Lyme disease was misdiagnosed for many years. She is a writer, a cartoonist, a professional patient, and a very silly person. Her writing and cartooning are limited by repetitive strain injury and neuropathy, but she uses assistive technology.


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Elizabeth D’Angelo

Love Warrior Visionary, painter of magic, healer of hearts, and spreader of hope – channels her creativity by maintaining an openness to play. While fighting an illness that has bound her almost entirely to her bed and bedroom for the last seven years, she transcends all boundaries by painting what she sees in flashes of insight. These flashes come in the form of playful curiosity. She says, “I am an adventurer with my heart. Where I can’t go with my legs, I go with my brush.”

Elizabeth often paints with her arms pinned to her sides due to severe weakness and muscle spasms from advanced CFS/ME. Elizabeth’s work appears at the top of every page and in many other places throughout this site.


Robin Mead

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I’m a Mixed Media, Water-coloring, Acrylic using Artist and Art Journaler. I Love color and use vibrant and bold colors to capture the joy in life. I believe that we all have a colorful source of imagination and joy…and this is what I try to capture and inspire within my creations…Beauty, Joy and a Zest for Life…! (Robin’s work appears in the sidebar on the right of every page and in many other places)


18557001_1654216101273982_5077079440229337874_n_pe.jpgDonni Lockridge

I was a former teacher who left public teaching to invest in my own private kindergarten, which soon became successful and sought after. Five years into it, I got a flu compounded by a cold and bronchitis. That was the beginning of the end for me. I pushed for two more years until I could stand no more. I became completely bedridden for 11 months and I’m currently 75% bedbound. I have always enjoyed painting. Soon, these images began flooding my vision. I hope that they speak for our ME/CFS community, and largely for anyone living with a chronic, limiting illness or condition.


5Zeraph Dylan Moore

In the past several years, I’ve become disabled with a chronic illness called CFS-ME. I no longer explore a lot of abandoned buildings, and am mostly housebound. Much of my work is created in bed. For this reason, working at a small size – usually just 5” x 5” – is ideal.

My artwork emulates industrial decay, archaeological artifacts, and processes of geologic change. As a child and teenager, I loved building things out of abandoned materials and exploring ruined houses and strange, forgotten places. I loved old things, deeply worn with texture and meaning.


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Preparation for the degree show at art college (1998). I was doing video installations at the time. A year later I was horizontal…

Marion Michell

Marion has M.E. & P.O.T.S., is mostly housebound and spends much of the day supine. For years she made art lying down. When her hands stopped cooperating she poured her art into writing, iPad on belly, ever so slowly, until tiny, concise feats of beauty emerged. Fact is: unless completely eviscerated by fatigue she needs to create. Even if she ponders one sentence for six hours.

She cannot quite believe she’s got a book out now. “Supinely Sublimely” started as a mini-blog about the vagaries of life with M.E. Her ‘textlings’ are poetic, often dark, but also full to the brim with gusto, humour, vitality. She’s got a turn of phrase: Amongst all the f-words, fatigue is the worst…


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Colleen Steckel

Colleen Steckel is Founder of the North Carolina and Ohio M.E./FM Support group on Facebook and an Advisory Committee Member at MEadvocacy


meaction_weblogo-50_#MEAction

An international network of patients empowering each other to fight for health equality for Myalgic Encephalomyelitis.


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2 thoughts on “How to Get On: Authors & Artists”

  1. Can someone tell me how on earth to even get a diagnosis of ME? Or get SS disability, or build a case?
    I have an abnormal spect scan. Showing low blood flow to many areas and causing cognitive impairment. The doctor gave me Citicholine..a vitamin and sent me on my way. i have an abnormal mri, showing the multiple bright dots of inflammation and my pituitary has shrunken. I am unable to get that properly evaluated. I am probably missing Growth Hormone and Cortisol, so may not even really have cfs or fibromyalgia, as disease, if they are, but missing hormones cause all of the same symptoms. I have Hashimotos Disease as well. My immune system is attacking my own glands. I was diagnosed by a Rheumatologist with Fibromyalgia and and CFS, she gave me Gabapentin and told me to take the pills, they will help me to sleep and exercise vigorously and i will be fine. The pills slowed my body down even more and i cannot where regular shoes due to pain. she told me my immune system and missing hormones from the pituitary and thyroid, have NOTHING to do with my fatigue and pain!! I have no doctor to tie these tests results together form a diagnosis and get me proper treatment . I am on Endocrinologist #6 now. I have seen 60 doctors, one specialist for each symptom, since 2008. I have been denied socials security disability year ago and am awaiting a hearing. They say i have no proof. No doctor has found me disabled! I can’t even digest my food. I am in bed 16 hours a day, with barely any sleep. My vision is blurry, dizzy, pain weak, heart racing..you know the way it is. aNY IDEA FOR HELP. oH, AND MY LAWYERS, WHO DROPPED ME, DID NOT KNOW ANYTHING ABOUT MY MEDICAL CONDITIONS AT ALL, SO THEY did not help me build a case. Excuse the caps. i leaned into a button..thanks for your advise and time.

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    1. Hi Emily,

      I am sorry to hear all you are going through.

      It sounds to me like you have some excellent evidence that will help your case. And I think you are smart to look into ways to strengthen your case before your hearing.

      I have some gathered some ideas for strengthening your case here: https://howtogeton.wordpress.com/social-security-disability/

      Here’s a list I am putting together of things you can do while waiting for your hearing. https://howtogeton.wordpress.com/2017/03/30/9883/

      Here is an overview of the Social Security Ruling on Chronic Fatigue Syndrome. I hope something in here might be helpful for you.

      https://howtogeton.wordpress.com/2017/02/05/how-to-use-the-social-security-ruling-for-chronic-fatigue-syndrome/

      Feel free to ask questions. Hope it goes great for you. ❤ lily

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