Authors & Artists

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Lily is homebound and partially bedridden with Myalgic Encephalomyelitis and Chronic Fatigue Syndrome. She lives with a small group of kind-hearted, like-minded friends and familiars who brighten her days. If she is not here posting, she is almost certainly somewhere petting a cat.
Vicki. Vicki’s blog is called “Miss Diagnoses” because she has too many diagnoses and because her Lyme disease was misdiagnosed for many years. She is a writer, a cartoonist, a professional patient, and a very silly person. Her writing and cartooning are limited by repetitive strain injury and neuropathy, but she uses assistive technology. Miss Diagnoses: Life with Multiple Ailments
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Elizabeth D’Angelo. Love Warrior Visionary, painter of magic, healer of hearts, and spreader of hope – channels her creativity by maintaining an openness to play. While fighting an illness that has bound her almost entirely to her bed and bedroom for the last seven years, she transcends all boundaries by painting what she sees in flashes of insight. Learn more: About the Artist
Elizabeth’s website
Elizabeth’s artwork store
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Robin Mead. I’m a Mixed Media, Water-coloring, Acrylic using Artist and Art Journaler. I Love color and use vibrant and bold colors to capture the joy in life. I believe that we all have a colorful source of imagination and joy…and this is what I try to capture and inspire within my creations…Beauty, Joy and a Zest for Life…! (Robin’s work appears in the sidebar on the right of every page and in many other places) Robin Mead Designs
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Donni Lockridge
I was a former teacher who left public teaching to invest in my own private kindergarten, which soon became successful and sought after. Five years into it, I got a flu compounded by a cold and bronchitis. That was the beginning of the end for me. I pushed for two more years until I could stand no more. I became completely bedridden for 11 months and I’m currently 75% bedbound. I have always enjoyed painting. Soon, these images began flooding my vision. I hope that they speak for our ME/CFS community, and largely for anyone living with a chronic, limiting illness or condition.
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Zeraph Dylan Moore My artwork emulates industrial decay, archaeological artifacts, and processes of geologic change.In the past several years, I’ve become disabled with a chronic illness called CFS-ME. I no longer explore a lot of abandoned buildings, and am mostly housebound. Much of my work is created in bed. For this reason, working at a small size – usually just 5” x 5” – is ideal. Zeraph
Grind Studios
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Teri Birch 
Teri has been living with Lyme Disease since 2007. She is the creator of the Facebook Group Social Service Connections for Lyme Disease.
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  Marion Michell has M.E. & P.O.T.S., is mostly housebound and spends much of the day supine. For years she made art lying down. When her hands stopped cooperating she poured her art into writing, iPad on belly, ever so slowly, until tiny, concise feats of beauty emerged. Fact is: unless completely eviscerated by fatigue she needs to create. Even if she ponders one sentence for six hours. Pictured above: Preparation for the degree show at art college (1998). “A year later I was horizontal…” Marion’s website 
Marion’s blog 
Marion’s book 
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Colleen Steckel
Colleen Steckel is Founder of the North Carolina and Ohio M.E./FM Support group on Facebook and an Advisory Committee Member at
MEadvocacy
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Sakara
Sakara is sixteen years old. She has had ME since the age of five. Sakara created the Visible Illness campaign, where she uses makeup to make invisible pain visible.
Visit Sakara’s Blog
Visit Visible Illness
Visit Sakara’s Facebook Page
Visit Sakara’s Instagram
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Laura Chamberlain
Laura is a writer who had to give up her career as a journalist when she became ill with ME. You can find Laura on Facebook, twitter, and on her wonderful blog Laura’s Pen.
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#MEAction
An international network of patients empowering each other to fight for health equality for Myalgic Encephalomyelitis.
 #MEAction
BedFest
Shoes Missing People

 

2 thoughts on “Authors & Artists”

  1. Can someone tell me how on earth to even get a diagnosis of ME? Or get SS disability, or build a case?
    I have an abnormal spect scan. Showing low blood flow to many areas and causing cognitive impairment. The doctor gave me Citicholine..a vitamin and sent me on my way. i have an abnormal mri, showing the multiple bright dots of inflammation and my pituitary has shrunken. I am unable to get that properly evaluated. I am probably missing Growth Hormone and Cortisol, so may not even really have cfs or fibromyalgia, as disease, if they are, but missing hormones cause all of the same symptoms. I have Hashimotos Disease as well. My immune system is attacking my own glands. I was diagnosed by a Rheumatologist with Fibromyalgia and and CFS, she gave me Gabapentin and told me to take the pills, they will help me to sleep and exercise vigorously and i will be fine. The pills slowed my body down even more and i cannot where regular shoes due to pain. she told me my immune system and missing hormones from the pituitary and thyroid, have NOTHING to do with my fatigue and pain!! I have no doctor to tie these tests results together form a diagnosis and get me proper treatment . I am on Endocrinologist #6 now. I have seen 60 doctors, one specialist for each symptom, since 2008. I have been denied socials security disability year ago and am awaiting a hearing. They say i have no proof. No doctor has found me disabled! I can’t even digest my food. I am in bed 16 hours a day, with barely any sleep. My vision is blurry, dizzy, pain weak, heart racing..you know the way it is. aNY IDEA FOR HELP. oH, AND MY LAWYERS, WHO DROPPED ME, DID NOT KNOW ANYTHING ABOUT MY MEDICAL CONDITIONS AT ALL, SO THEY did not help me build a case. Excuse the caps. i leaned into a button..thanks for your advise and time.

    Like

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