Lily is homebound and partially bedridden with Myalgic Encephalomyelitis and Chronic Fatigue Syndrome. She lives with a small group of kind-hearted, like-minded friends and familiars who brighten her days. If she is not here posting, she is almost certainly somewhere petting a cat.
Vicki’s blog is called “Miss Diagnoses” because she has too many diagnoses and because her Lyme disease was misdiagnosed for many years. She is a writer, a cartoonist, a professional patient, and a very silly person. Her writing and cartooning are limited by repetitive strain injury and neuropathy, but she uses assistive technology.
- Miss Diagnoses: Life with Multiple Ailments
- How to #Resist Without Using All Your Spoons
- Shit Doctors Say
Love Warrior Visionary, painter of magic, healer of hearts, and spreader of hope – channels her creativity by maintaining an openness to play. While fighting an illness that has bound her almost entirely to her bed and bedroom for the last seven years, she transcends all boundaries by painting what she sees in flashes of insight. These flashes come in the form of playful curiosity. She says, “I am an adventurer with my heart. Where I can’t go with my legs, I go with my brush.”
Elizabeth often paints with her arms pinned to her sides due to severe weakness and muscle spasms from advanced CFS/ME. Elizabeth’s work appears at the top of every page and in many other places throughout this site.
I’m a Mixed Media, Water-coloring, Acrylic using Artist and Art Journaler. I Love color and use vibrant and bold colors to capture the joy in life. I believe that we all have a colorful source of imagination and joy…and this is what I try to capture and inspire within my creations…Beauty, Joy and a Zest for Life…! (Robin’s work appears in the sidebar on the right of every page and in many other places)
I was a former teacher who left public teaching to invest in my own private kindergarten, which soon became successful and sought after. Five years into it, I got a flu compounded by a cold and bronchitis. That was the beginning of the end for me. I pushed for two more years until I could stand no more. I became completely bedridden for 11 months and I’m currently 75% bedbound. I have always enjoyed painting. Soon, these images began flooding my vision. I hope that they speak for our ME/CFS community, and largely for anyone living with a chronic, limiting illness or condition.
Zeraph Dylan Moore
In the past several years, I’ve become disabled with a chronic illness called CFS-ME. I no longer explore a lot of abandoned buildings, and am mostly housebound. Much of my work is created in bed. For this reason, working at a small size – usually just 5” x 5” – is ideal.
My artwork emulates industrial decay, archaeological artifacts, and processes of geologic change. As a child and teenager, I loved building things out of abandoned materials and exploring ruined houses and strange, forgotten places. I loved old things, deeply worn with texture and meaning.
Marion has M.E. & P.O.T.S., is mostly housebound and spends much of the day supine. For years she made art lying down. When her hands stopped cooperating she poured her art into writing, iPad on belly, ever so slowly, until tiny, concise feats of beauty emerged. Fact is: unless completely eviscerated by fatigue she needs to create. Even if she ponders one sentence for six hours.
She cannot quite believe she’s got a book out now. “Supinely Sublimely” started as a mini-blog about the vagaries of life with M.E. Her ‘textlings’ are poetic, often dark, but also full to the brim with gusto, humour, vitality. She’s got a turn of phrase: Amongst all the f-words, fatigue is the worst…
Colleen Steckel is Founder of the North Carolina and Ohio M.E./FM Support group on Facebook and an Advisory Committee Member at MEadvocacy
An international network of patients empowering each other to fight for health equality for Myalgic Encephalomyelitis.
- How Patty’s Lawyer Never Told Her What She Needed to Know by Patty Skelton Preston
- How Great Is It to Have Lyme Disease by Lauren Lovejoy & Friends
- How Sandra Got Her Overpayments Waived by Sandra Rick Pearson